So here's the Aron update. He went to a hematology/oncology specialist on Thursday to make sure he didn't have leukemia or lymphoma or some sort of blood disorder. Good news: he doesn't. The doctor that we met (Nse Ntukidem, M.D. ) was awesome! He was very thorough, sat down and explained every last bit of information to us, and was just great with his bedside manner. He showed us a picture of his kids (he could not have been a prouder dad) and told us that he weighs himself nakey (I know, sounds weird but it was kind of endearing for some reason). Dr. Nse's guess is that (again) Aron has this weird virus thing that lingers for 6 months.6 months!
He told us what the virus was called (something like Chronic Viral Syndrome or something like that). Basically, he thinks Aron's getting his little fever (99.5 on a daily basis in the afternoon) because his body is still trying to a.) fight off this virus or b.) is in a habit of fighting off the virus even though it's not still there. There's a possibility that he might now have some sort of variety of lupus from the original virus. Everyone remembers that scary 105 fever from after our Florida vacation in March, right? Well, we think that's when it all started. Dr. Nse ordered an IgM test on Aron which is just a blood test. The IgM test will (I hope I get this right because I couldn't find it on Wikipedia to link it) hopefully be able to test his cells memory of the original virus to see if it's still active or has just left it's viral fingerprint in Aron's cells. The other possibility that's still out there is that he could have a type of MS that didn't show up on his MRI. Dr. Nse said there is one type of MS that is sneaky and doesn't show up unless you do a lumbar puncture. We're holding off on seeing a neurologist because he thinks this virus thing is way more likely. The next step is a referral to the rheumatologist.
All in all, I'd say Aron looks a bit better. He has a little bit more energy but not like before. He's still pretty thin (weighing in at a hefty 134#) and looks kind of tired when you look at him but I think he's on the mend.
Good news is that if it is the Chronic Viral whatever and it started in March, Aron already has 4 months of this under his belt.
You can do it, Aron!
2 comments:
Thanks for the update, Annie ~ tell Aron I'm sending lots of positive vibrations his way!! He could drink packets of Emergen-C ~ it has lots of potassium and other good things. I drink it and just read an article about a gal who boosted her energy level with it. They recommend 2-4 packets a day ~ give it a try!!
Aunti Alice
You know you are still in my prayers. I have great faith that you'll get through this.
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